Autism Spectrum Disorder: An Overview of Early Detection, and Role of Nurses
DOI:
https://doi.org/10.26463/rjns.13_1_13Keywords:
Autism, Overview, Detection, Nurses, RoleAbstract
Autism spectrum disorder (ASD) is a neurological and developmental illness that affects social relationships and communication, as well as a variety of challenging behaviors. Children are not screened for ASD, despite the fact that it is generally recommended. The best outcomes for people with ASD come from early intervention, and developmental surveillance and screening are essential before intervention. Nurses are the primary healthcare providers for children, and they are in a unique position to encourage their development. They have regular contact with children before they start school and can deliver family-centered, comprehensive, coordinated care, including a more thorough medical assessment if a screening suggests a child is at risk for a developmental condition. The diagnosis of ASD is on the continual rise, usually diagnosed in the younger years of life, but this is not always the case. Regardless of when the diagnosis is received, it is important to remember that individuals diagnosed with ASD continue to grow into adulthood and experience many of the same illnesses and disorders as the rest of society thus rendering the nurse the possibility of interacting with this special population sometime throughout his or her career.
References
1. American Psychiatric Association. American Psychiatric Association DSM-5 Task Force. Diagnostic and Statistical Manual of Mental Disorders (DSM-5).2013.
2. Wetherby AM, Prizant BM, Schuler AL.
3. Understanding the nature of communication and language impairments. Autism Spectrum Disorders 2000;9:109-41.
4. Johnson CP, Myers SM. Identification and evaluation of children with autism spectrum disorders. Pediatrics 2007;120(5):1183-215.
5. Zwaigenbaum, L, Brian J. A, Ip A. (2019). Early detection for autism spectrum disorder in young children. Paediatrics & Child Health 2019;24(7): 424-432.
6. Martínez Pedraza F D L, Carter, A S. Autism spectrum disorders in young children. Child Adolesc Psychiatr Clin N Am 2009;18(3): 645-663.
7. Volkmar, F. R, Lord C, Bailey A, et al. Autism and pervasive developmental disorders. J Child Psychol Psychiatry 2004;45(1):135-170.
8. Luyster R, Richler J, Risi S, et al. Early regression in social communication in autism spectrum disorders: a CPEA study. Dev Neuropsychol 2005;27(3):31136.
9. Fombonne, E. Epidemiological surveys of autism and other pervasive developmental disorders: an update. J Autism Dev Disord 2003;33(4):365-382.
10. Young, G. S., Merin, N., Rogers, S. J., & Ozonoff, S. Gaze behavior and affect at 6 months: predicting clinical outcomes and language development in typically developing infants and infants at risk for autism. Dev Sci 2009;12(5):798-814.
11. Krishnamurthy V. A clinical experience of autism in India. J Dev Behav Pediatr 2008;29:3313.
12. Singhi P, Malhi P. Clinical and neurodevelopmental profile of young children with autism. Indian Pediatr 2001;38:38490.
13. Jain R, Juneja M, Sairam S. Children with developmental disabilities in India: Age of initial concern and referral for rehabilitation services, and reasons for a delay in referral. J Child Neurol 2013; 28:45560.
14. Kommu JV, Gayathri KR, Srinath S, et al. Profile of two hundred children with autism spectrum disorder from a tertiary child and adolescent psychiatry center. Asian J Psychiatr 2017;28:516.
15. Rudra A, Banerjee S, Singhal N. Translation and usability of autism screening and diagnostic tools for autism spectrum conditions in India. Autism Res 2014;7:598607.
16. Daley TC, Sigman MD. Diagnostic conceptualization of autism among Indian psychiatrists, Psychologists, and paediatricians. J Autism Dev Disord 2002; 32:1323.
17. Are children born with autism, or does it develop later? (2016). New York: Autism speaks Inc. https://www.autismspeaks.org/blog/2013/10/11/are- children-born-autism-or does-it-develop-later/.
18. Barnett, R. Autism. The Lancet 2016;387 (10033): 302082. Doi: 10.1016/s0140-6736(16)30530-x. 2082.
19. Farida El-Baz, Nanees Ahmed Ismael, Sahar M, et al. Risk factors for autism: An Egyptian Study. Egypt. J. Med. Hum. Genet 2011;12:31–38.
20. Autism-spectrum disorders. (2021). WHO. Https: // www.who.int/news-Room/fact-sheets/detail/autism-spectrum-disorders.
21. Kaat AJ, Shui AM, Ghods SS, et al. Sex differences in scores on standardized measures of autism symptoms: a multisite integrative data analysis. J Child Psychol Psychiatry 2021;62(1):97-106.
22. Anil Chauhan, Jitendra K Sahu, Nishant Jaiswal, et al. Prevalence of autism spectrum disorder in Indian children: systematic review and meta-analysis. Neurol India 2019;67(1):100.
23. Bradshaw J, Steiner AM, Gengoux G, et al. Feasibility and effectiveness of very early intervention for infants at-risk for autism spectrum disorder: A systematic review. Journal of autism and developmental disorders, J Autism Dev Disord 2015;45(3):778-794.
24. Christensen DL, Maenner MJ, Bilder D, et al. Prevalence and characteristics of autism spectrum disorder among children aged 4 years—early autism and developmental disabilities monitoring network, seven sites, United States, 2010, 2012, and 2014. MMWR Surveill. Summ 2019;68(2):1
25. Ravi S, Venkatesh C, Kattimani S, Mahadevan S. Maternal and birth risk factors for children screening positive for autism spectrum disorders on M-CHAT-R, Asian J Psychiatr 2016
26. Ratto AB, Kenworthy L, Yerys BE, et al. What about the girls? Sex-based differences in autistic traits and adaptive skills. J Autism Dev Disord 2018;48(5):1698-1711
27. Kaat A J, Shui AM, Ghods SS, Farmer CA, Esler AN, Thurm A, Bishop SL. Sex differences in scores on standardized measures of autism symptoms: a multisite integrative data analysis. J Child Psychol Psychiatry 2021;62(1):97-106.
28. Hahler EM, Elsabbagh M. Autism: A global perspective Curr. Dev. Disord. Rep. Rep 2015;2(1):58-64.
29. Fein D, Barton M, Dumont-Mathieu T. Optimizing outcome in autism spectrum disorders.Policy Insights Behav Brain Sci 2017;4(1):71- 78.
30. Lord C, Brugha TS, Charman T, Cusack J, Dumas G, Frazier T, Veenstra-Vander Weele J. Autism spectrum disorder. Nat. Rev. Dis. Primers 2020;6(1):1-23.
31. Barton E, Harris B, Leech N. Autism Identification Policies and Practices in Early Childhood. Infants & Young Children 2016;29(4):267-289
32. Centres for Disease Control and Prevention. Data and statistics on autism spectrum disorder. (2020). https://www.cdc.gov/ncbddd/autism/facts.html
33. Centres for Disease Control and Prevention. (2019). National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention.
34. Kleinman J M, Robins D L, Ventola P E, et al. The modified checklist for autism in toddlers: a follow-up study investigating the early detection of autism spectrum disorders. J Autism Dev Disord 2008;38(5):827-839.
35. Robins DL, Fein D, Barton ML, et al. The Modified Checklist for Autism in Toddlers: an initial study investigating the early detection of autism and pervasive developmental disorders. J Autism Dev Disord 2001 31(2):131-144.
36. Robins DL, Fein D, Barton M. (2009). The Modified Checklist for Autism in Toddlers, Revised with Follow-up (M-CHAT-R/F) Self-published. Available at: www.mchatscreen.com
37. Jaisoorya TS, Preeti J, Shoba S, et al. Toddlers at risk for Autism Spectrum Disorders from Kerala, India – A community-based screening. Asian. Volume, January 2018, Pages 10-12.
38.Werner E, Dawson G. Validation of the phenomenon of autistic regression using home videotapes. Arch Gen Psychiatry 2005;62(8):889-895.
39. Zuckerman KE, Sinche B, Mejia A, Cobian M, Becker T, Nicolaidis C. Latino parents' perspectives on barriers to autism diagnosis. Acad Pediatr 2014;14(3):301-8.
40. Christensen DL, Maenner MJ, Bilder D, Constantino JN, Daniels J, Durkin MS, Fitzgerald RT, KurziusSpencer M, Pettygrove SD, Robinson C, Shenouda J. Prevalence and characteristics of autism spectrum disorder among children aged 4 years—early autism and developmental disabilities monitoring network, seven sites, United States, 2010, 2012, and 2014. MMWR Surveill Summ 4;68(2):1.
41. Elder JH, Brasher S, Alexander B. Identifying the barriers to early diagnosis and treatment in underserved individuals with autism spectrum disorders (ASD) and their families: a qualitative study. Issues Ment Health Nurs 2016;37(6):412420.
42. Stahmer AC, Vejnoska S, Iadarola S. Caregiver voices: Cross-cultural input on improving access to autism services. J Racial Ethn Health Disparities 2019;6(4):752-773.
43. Ribeiro SH, Paula CSD, Bordini D, et al. Barriers to early identification of autism in Brazil. Braz J Psychiatry 2017;39:352-354.
44. Bradshaw J, Steiner AM, Gengoux G, et al. Feasibility and effectiveness of very early intervention for infants at-risk for autism spectrum disorder: A systematic review. J Autism Dev Disord 2015;45(3):778-794.
45. Hirai AH, Kogan MD, Kandasamy V, et al. Prevalence and variation of developmental screening and surveillance in early childhood. JAMA pediatrics 2018;172(9):857-866.
46. Bivarchi FA, Kehyayan V, Al-Kohji SM. Barriers to the early detection and intervention of children with autism spectrum disorders: A literature. J Nurs Educ Pract 2021;11(11).
47. Gardner MR, Suplee PD, Jerome EB. Survey of nursing faculty preparation for teaching about autism spectrum disorders. Nurse educ 2016;41(4): 212-216.
48. Osterling J, Dawson G. Early recognition of children with autism: A study of first birthday home videotapes. J Autism Dev Disord 1994;24(3):247257.
49. Kamau LZ. Autism spectrum disorders (ASD) in Kenya: Barriers encountered in diagnosis, treatment, and management. J Res Pharm Sci 2017;3:1- 11